In November 2009, Joshua, the lovely 14 week old son of my friends Nicola and Stephen, passed away not long after he was diagnosed with a rare neurological disorder, Pontocerebellar Hypoplasia Type 1.
They set up the Joshua Deeth Foundation in his memory and since then have raised thousands of pounds to go towards research into this condition and for information and support to families affected by all six types of Pontocerebellar Hypoplasia.
For their Christmas Appeal, they are asking people to donate £2 by texting TJDF99 £2 to 70070. Please give if you can – and please help me publicise and raise awareness of this condition and the Foundation. I know Nicola and Stephen will appreciate every penny raised for a very worthwhile cause.