Category Archives: Amy and Friends

>Rare Disease Day 2010 Part 2: Cockayne Syndrome and Amy and Friends

> This is the second of a two part posting to mark Rare Disease Day 2010. You can read part 1 here. Last year I spoke to Jayne Hughes, the wonderful founder of the charity Amy and Friends and wrote … Continue reading

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>The Joshua Deeth Foundation – honouring a much loved baby son

>When you first become a parent, it’s a daunting experience, no matter how much you’ve always dreamed of it. How on earth do you meet the needs of this small person? Thankfully, you come into contact with others in much … Continue reading

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>Help Amy and Friends while watching the Marathon

>Imagine how you would feel if you were lining up in Blackheath waiting to take part in the London Marathon. You’d have gone through months of painful training and would be wondering if it would all pay off and you’d … Continue reading

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>A Trip Down Memory Lane for my 500th post

>It’s taken 2.5 years, but I’ve managed to chock up half a millennium’s worth of posts. In the style of many US TV series, I thought I’d make this a bit of a flashback episode and remind you of some … Continue reading

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>Help Amy and Friends find others with Cockayne Syndrome

>A couple of months ago, I randomly found an article about X Factor Judge Louis Walsh getting involved with a children’s charity and blogged this thinking that a bit of publicity in the blogosphere for the cause wouldn’t be a … Continue reading

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